No parent ever wants to hear these words, "Life expectancy is unpredictable." Those words gripped my heart with suffocating fear. A blackness that shrouded my soul and consumed every thought. How does a person live in constant fear of the unknown? Life becomes a struggle. Medication, monitors, therapies, screenings, let her leave the house or never leave her side?
None of us know when God will call us home. We all pray we live long and happy lives. Four words that will NO longer bury me... "Life expectancy is unpredictable." I expect my daughter will live long after I am gone. I predict, she will be the change in the lives of many people.
A love for Christ burns a fire in her soul and has forged an empathetic heart that knows no limit to God's mercy and grace. She radiates a peacefulness that is undeniable. There is something quite humbling when you witness your child speaking God's truth. I am witness to a divine purpose.
My daughter's name was etched upon the brightest star before she was born. She will be the change this broken world needs. Fear will no longer be my companion. Fear ... you are a liar.
My youngest child beating the odds. Born with two genetic disorders that affect her entire body, but mainly her heart. 18 and at bible school on her way to become a youth Pastor.
My Review
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Beautiful writing, it made me feel sad yet hopeful. The struggle of illness is so real and terrifying. As someone who fought cancer at 18 I can only imagine this is how my parents felt. Thank you for sharing your story!
As a non-christian, this poem speaks to me. I am also speaking as someone with COPD and understand the struggles your daughter goes through with doctors, etc. My favorite line I would say was this: "Life becomes a struggle. Medication, monitors, therapies, screenings, let her leave the house, or never leave her side?"
One thing about grammar though in that line, between the house and or should have a comma. I hope you and your daughter enjoy Thanksgiving! -Kay
As a dyslexic, I struggled to read this due to the font. I could make out some parts and I think this poem is about god? I really wish I could review this properly. Have a great Thanksgiving! -Kay
''courage is not the absence of fear but the triumph over it'' said Nelson Mandela,
Your daughter and your family are fearless and courageous. Her life will be big......
-Manya
Posted 5 Years Ago
4 Years Ago
Apologies!!! I missed this review! Thank you for you kind words. :-)
Some kids just kick on through.
Your poem will resonate with every parent bringing up kids.
Not religious myself, but hope your God gives strength to you both.
Posted 5 Years Ago
5 Years Ago
She is an amazing kid, beating the odds...
Thanks for reading and the review :-) much appreci.. read moreShe is an amazing kid, beating the odds...
Thanks for reading and the review :-) much appreciated.
Thank you Susan.
"Fear will no longer be my companion. Fear ... you are a liar."
I understand your work, birth of child make us know. The world isn't our world, it is their world and they remind us. To be brave again. A outstanding story.
Coyote
Posted 5 Years Ago
5 Years Ago
:-) That picture is of my lilly. A blessing to me and a constant reminder how precious life is.
Every day is precious, and there are many who are less fortunate than ourselves. A most inspiring, beautiful piece, Susan, and I pray that your daughter is the tool of that divine purpose!
Much love,
Kelly
Posted 5 Years Ago
5 Years Ago
Thank you for reading this Kelly and for the prayers! She is truly a blessing.